A supportive communityĮver since Melody was a baby, the family has participated in events with the CATCH (Center for Achievement of Teens and Children with Hand Differences) program. They weren’t expecting this, they didn’t plan for this, so I gave them information to help them understand and anticipate what’s next and feel confident and safe.” “I explained the condition to them and that it is random, that it is something completely healthy children can be born with. “Parents want information and they want to understand how this happened, what it means and if their child is going to be OK,” Dr. Lightdale-MiricĪ referral led the family to drive an hour from their Inland Empire home to Children’s Hospital Los Angeles, where they took 3-month-old Melody to meet with Nina Lightdale-Miric, MD, Director of the Pediatric Hand and Upper Extremity Surgery Program at the Jackie and Gene Autry Orthopedic Center. The non-preventable condition affects one in 15,000 births each year. ![]() Jackylin and Jesus learned soon after their daughter’s birth that Melody had amniotic band syndrome (also known as constriction ring syndrome), a rare congenital condition where string-like bands of tissue from the amniotic sac entangle a developing fetus and like a lasso, the bands wrap around fingers and toes. All day I kept going over in my head ‘what did I do wrong during the pregnancy?’ I was getting ultrasounds and pictures and nothing indicated anything was wrong with her development.” Learning about hand differences ![]() “They brought her to me, and I was so emotional. “I had a C-section and when they delivered her, they called Jesus over to show him that she was missing some fingers and toes,” Jackylin says. We were surrounded by music all the time, so as soon as we found out we were having a girl, we knew she had to be named Melody,” Jackylin says, noting that her pregnancy was nothing short of harmonious-until the day her daughter was born. “I would tag along to whatever club he was DJ-ing at as well as go to concerts and bars to hear bands play.
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